Matthias Löbe, Institut für Medizinische Informatik, Statistik und Epidemiologie (IMISE), Universität Leipzig
Prof. Dr. Thomas Ganslandt, Heinrich-Lanz-Zentrum für Digitale Gesundheit, Universitätsmedizin Mannheim (requested)
Prof. Dr. Ulrich Sax, Universitätsmedizin Göttingen (requested)
The National Core Data Set of the German Medical Informatics Initiative
One primary aim of the German Medical Informatics Initiative (MII) is to make data from the Hospital Information Systems of the university hospitals available for research. The patient data, however, are usually stored in different formats, in different IT systems and in different levels of detail and quality. In order to ensure interchangeability and comparability, cross-location specifications to ensure technical and semantic interoperability of the data are required.
All consortia members of the MII agreed on the concept of a joint national core data set. In addition to master data, the minimum data set includes case data, diagnoses, procedures, laboratory values, and medication. In the medium term, it will be extended by more specific modules e.g. for microbiology, oncology, radiology or imaging together with the corresponding medical societies.
Currently, medical concepts are captured and organized in information modeling tools and annotated with medical terminologies such as ICD-10, LOINC or SNOMED CT. Parallel to this, implementations as FHIR profiles are under development in cooperation with HL7 Germany.
The workshop will address the following points:
- Presentation of the content of the current dataset specification and ideas for further development and governance
- Formalization and modeling of the individual data elements in ART-DECOR and technical implementation and provision with Simplifier.net
- Use of the core data set in first research projects ("demonstrator study", overarching use cases)
- Outlook on the regulations for access to data by external researchers
The workshop will try:
- To raise awareness of the existence and manifestation of the MII National Core Data Set
- To show the current state of implementation utilizing international standards
- To get feedback or expression of interest from the audience
The workshop is intended for STC attendees who have to provide or want to use data elements of the core data set in their own projects, especially:
- Medical Informatics Scientists
- Data Scientists
- Health Care Researchers